skippyhawk

Well the boy is in the hospital. He was in lots of pain yesterday when we went to feed Chemo Sabe so the doctors decided that a stay and tests were in order. They were looking for 1. Blood clot in his lungs, 2. pneumonia, 3. kidney infection, 4. cracked rib (from coughing) 5. cancer rearing its ugly head. So yesterday was kinda scary. Today is much better.

After many tests pneumonia won. The pneumonia is located in the lower right quadrant which was causing the pain. Considering the alternatives, I think that’s pretty good news. They are giving him antibiotics and heavy duty pain drugs.

The REALLY good news is the CAT scan showed that the cancer has stabilized from the last scan in February. This means that Chemo Sabe is working!

The bad news is that Bob has to stay at St. Luke’s Hospital until the end of the week.

More to come, so stay tuned and keep those prayers coming his way.

Thanks,

Sue

Just when we thought it was safe to go into the water, out of nowhere comes the shark. Last week chemo sabe was good, this week, not so much. . .

New symptoms: dry heaves, coughing, shortness of breath and fever, so we went to the doctor/hospital yesterday had a chest x-ray, no pneumonia, had an echo cardiogram, no fluid around heart, both good things. So when in doubt get more prescriptions. One magic little pill stops the coughing for hours, an inhaler for breathing and he now has four anti-nausea medications.

The boy is feeling kinda down right now but personally I think he is having poker withdrawals. I’m sure the Ameristar casino will be sending a search party out soon!

That’s it from here, have a good weekend, turn those clocks forward and look for signs of spring. My daffodils and day lilies are starting to poke through, and I’ve seen 3 cardinals in the yard, so I know spring is close by!

Sue

Today Sue and I went and got a refill for Chemo Sabe.  84 ml for $4300.00.  You think the price of gas is high.  That does include a weeks rental of Chemo sabe so I guess it isn’t too bad.  Good thing we have good insurance otherwise all you working stiffs would be footing the bill while we went on welfare. 

 I haven’t had nearly the fatigue with this cocktail as the last.  Also no flu-like symptoms, but a little more nausea.   I guess the trade off is good, especially if it does some good with slowing down the growth of the tumors.  We will find out more about that with the next CT scan in about 6 or 7 weeks.

All I have for now. 

 bob

your friendly daughterly admin checking in.

many of you may have noticed that this site experienced a 12 hour or so outage today. i will spare you most of the technical intrigue, but let’s just say that the computer that makes the site go found itself in an environment inhospitable to going. so it stopped.

we took it home and it’s now living on a shelf in our living room, where it’s much drier and quite content.

Just a quick update. Started the day with the tornado sirens going off at 8:00 am. This is not the way to wake up. It did get however get better from there, but it took awhile.

The new fanny pack chemo doesn’t seem to affect Bob as negatively as the last chemo. Two days after starting he felt good enough to go to “work”. And everyone knows where that is. But before he ventured outside he had to take a shower, first time since the port is installed. Now I want you to read this and then close your eyes and try to picture what I have just written.

Shower rules: Cannot get the port (upper chest) wet. Cannot get the machine (chemo sabe) wet. Cannot let the water hit the chest.

We stuck Glad Press and Seal (suggested by chemo nurses) to Bob’s chest. I guess the good news is they shaved his chest when they put the port in. (I know Vicki and Bobby Cradit are now laughing) Anyway back to the wrapping. After pressing and sealing we then tried to tape the edges. Remember there is a tube coming out. That white adhesive claims its waterproof but no.

Moving on, we then, using the fanny pack belt, tied chemo sabe to the door handle of the shower stall. Again, tube hanging out, so door not shut, shower on, you get the picture. After all that we still failed. The port got a tad wet, the tape didn’t hold, then we had to rip off the taped press and seal without pulling everything out. I would have taken pictures but I don’t want to be arrested for porn! How many of you have saran wrap and press and seal wrap in your bathrooms??? Now close your eyes and get the picture!

The good news is when dressed and with a sweater on you can hardly see sabe and he looks normal. He doesn’t look like a f—ing tourist (Bob’s comments before today.) We also stopped at Walgreens and I bought 6 different types of tape so we should find something that works! Sponge baths are definitely out of the question.

That’s our Thursday, how was yours?